TransRED
ASH Releases Toolkit for Transition from Pediatric to Adult Hematologic Care
TRANSRED is developed to guide our young warriors from child health to adult healthcare regarding Sickle Cell Disease. We know this can be a challenging process, but with education and guidance your transition stages will always be ready.
Tips to Prepare for Transition
Search for a doctor who treats adults and is knowledgeable about SCD. There are a limited number of doctors who are trained to properly treat adult patients with SCD. Reach out to local SCD organizations for help finding a doctor trained to treat SCD to continue to receive treatment and care.
Be prepared to educate healthcare providers who may be less familiar with SCD and your health history. Keep a record of your medical history and give it to your new adult care provider.
Join a support group for young people with SCD going through transition. You don’t have to go through transition alone. Get connected and share your experiences.
Learn about health insurance options and how eligibility may change as you get older. These changes can affect access to healthcare services, treatment options, and the ability to receive timely care.
Transition can be a difficult and overwhelming time for teens with SCD because it can also coincide with major life changes and milestones that young adults will face as they mature into adulthood. Life changes, such as attending college, finding a job, or moving to a new location, can make it harder for teens with SCD to manage their transition. By being prepared with resources, knowledge, and support, teens with SCD can overcome these challenges and stay healthy during transition.
